Caregiver Resources

You are not alone.

Providing care for a loved one is a job we didn’t apply for! In most cases, it involves a drastic life transition that catches the entire family off-guard. It is daunting and isolating, navigating caregiving responsibilities. But we want you to know you are not alone.

We hope you find these resources valuable.

Caregiver Resources for Brain Injury

Below is a selection of websites related to caregivers and brain injuries. Click on the title to go to website. We hope you find this information helpful!

ABLELINK TECHNOLOGIES

Offers resources in assistive technology for individuals with intellectual and cognitive disabilities.

THE AMERICAN SPEECH-LANGUAGE HEARING ASSOCIATION

The American Speech-Language Hearing Association maintains this website to help you locate cognitive therapists and speech/language pathologists in your area.

BRAIN INJURY ASSOCIATION OF AMERICA

Brain Injury Association of America can direct you to local offices in your area. Search their website for other resources including location of neuropractitioners in your area.

BRAIN INJURY ALLIANCE OF COLORADO

The Brain Injury Alliance of Colorado is the go-to resource for help and services for survivors of brain injury, their families and providers.

BRAIN LINE

Resources for preventing, treating and living with TBI.

HEADS UP TO YOUTH AND SPORTS

An online source for credible health information and a tool kit about preventing concussions in youth sports.

EEG INFO

A website with information about neurofeedback.

THE EMDR INTERNATIONAL ASSOCIATION

The EMDR International Association offers resources, the latest research and how to find an EMDR Therapist. Scientific research has established EMDR as being effective for PTSD, phobias, pain disorders, performance anxiety, addictions, sexual and/or physical abuse, and stress reductions.

FREE HEARING TEST

Offers an online, free hearing test.  The site is a convenient compilation of hearing health care resources and information.

E.A.R. CUSTOMIZED HEARING

Learn about a multi-functional dual filtered hearing protector, called Heardefenders, that allows you to hear critical sounds needed for communication and environmental awareness.  It is one of the products developed by the Environmental Acoustical Research, Inc.

INDEPENDENT LIVING

Information about assistive devices that can help compensate for cognitive deficits, such as impaired memory and disorientation to time range from simple appointment books and basic digital watches with alarm function to more advanced devices, such as vibrating watches which display messages.

SOMATIC EXPERIENCING TRAUMA INSTITUTE

Learn about Somatic Experiencing® which is a body-awareness approach to trauma being taught throughout the world. It is the result of over forty years of observation, research, and hands-on development by Dr. Peter Levine.

BRAIN RESOURCE CENTER

The Brain Injury Resource Center is a multidisciplinary team trained in traumatic brain injury. Consultants include: individuals with TBI, family members, learning specialists, nurses, paraprofessionals, lawyers, neuropsychologists, and physicians specializing in emergency medicine, and neurology. The TBI Consulting Team offers consultations, research assistance, case management services, legal services and in-service training.

KANSAS SPORTS CONCUSSION PARTNERSHIP

An online resource that provides functional concussion assessment tools for student athletes, parents, coaches and physicians.

ROCKY MOUNTAIN HOSPITAL FOR CHILDREN

Offers the REAP Project, a community-based concussion management program for families, schools and medical professionals.

SENSORY OVERLOAD

Reduce the NOISE: Help loved ones of all ages with sensory overload enjoy shopping, restaurants, and public places that can cause a sensory meltdown.

HELP WITH PAYING BILLS

Bills assistance programs listed by state.

We hope you find this list of grants and options for financial assistance helpful in lightening your load.

Where to Find Grants

The following resources are excellent starting points for locating spinal cord injury grants:

THE CHRISTOPHER AND DANA REEVE FOUNDATION 

This website provides updates on new financial assistance programs and also offers grants of its own.

GRANTS.GOV 

Use this as a searchable tool for locating government-backed grants.

THE AMERICAN MEDICAL ASSOCIATION 

This organization sponsors healthy living grant programs. These grants won’t cover medical expenses but if you’re interested in educating others about spinal cord injuries, services, or general health and wellness, such a grant could be ideal.

PARALYZED VETERANS OF AMERICA 

This website provides a listing of scholarships and grants, as well as information about resources and tips on advocating for your needs.

HELP HOPE LIVE 

This resource offers information for those seeking grants for spinal cord injury-related expenses.

Spinal Cord Injury Grants 

Thousands of organizations offer grants, and the specific value and requirements associated with these grants is constantly changing, so check with the sponsoring organization before completing an application packet. Some of the most respected spinal cord injury grant programs include:

SPINAL CORD OPPORTUNITIES FOR REHABILITATION ENDOWMENT (SCORE)

Offers grants to alleviate spinal cord injury-related financial hurdles, with preference given to young people injured during athletic pursuits.

TRAVIS ROY FOUNDATION

Offers grants for specific quality-of-life endeavors, such as installing      an elevator or upgrading a wheelchair.

180 MEDICAL SCHOLARSHIP

Offers grants and scholarships to spinal cord injury survivors who wish to pursue higher education.

GRIDIRON HEROES

Offers grants to athletes injured in football games.

THE JOSEPH GROH FOUNDATION

Offers grants and other assistance to former participants in the HVAC industry.

THE CINDY DONALD DREAMS OF RECOVERY FOUNDATION

Offers grants to spinal cord and brain injury survivors to cover  therapeutic services and medical equipment.

CHALLENGED ATHLETES FUND

Provides grants  to support people with physical challenges these funds may be used for equipment such as prosthetics or adaptive sport equipment, travel or      competition expenses or coaching and training. 

MALONEY VISION INSTITUTE

Provides grants to spinal cord injury victims whose injuries interfere      with their ability to put on glasses or contacts.

HIGH FIVES FOUNDATION

Offers grants, resources, and inspiration to those who suffer life-altering injuries.  Raises injury prevention awareness to support outdoor sports athletes.

GUIDE TO PAYING FOR COLLEGE FOR PEOPLE WITH DISABILITIES

College grant application assistance. 

Advocacy & Rights

We’re dedicated to helping build you up with access to advocacy resources so that you can be the best support for your loved ones.

ABILITY CONNECTION OF COLORADO (FORMERLY CP OF COLORADO)

CP of Colorado’s mission is to create, support and encourage inclusive opportunities for all Coloradans and their families through early education, employment, information and referral, advocacy, public education and collaborative strategies.

ASSISTIVE TECHNOLOGY IN CARS

This article shares a variety of options for assistive modifications in cars.

ATLANTIS COMMUNITY INC.

ADAPT is a national grassroots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.

CENTER FOR PEOPLE WITH DISABILITIES

Helping individuals with disabilities live and work in the community, enjoying life to the fullest extent possible, living independent and productive lives.

COLORADO CROSS-DISABILITY COALITION

To promote social justice and create systems change that will benefit people with all types of disabilities through education, advocacy, and services.

ESTES VALLEY VICTIMS ADVOCATES INC

Estes Valley Victim advocates is a non-profit agency committed to providing advocacy services to victims of crime and trauma including safe-housing for domestic violence victims, counseling, referrals and community education.

NATIONAL MULTIPLE SCLEROSIS SOCIETY-COLORADO-WYOMING CHAPTER

The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS.

PARALYZED VETERANS OF AMERICA, MOUNTAIN STATES CHAPTER

Paralyzed Veterans of America Mountain States Chapter will use our expertise to be the leading advocate for:Quality health care for our members,Research and education addressing spinal cord injury and dysfunction,Benefits available as a result of our members’ military service,Civil rights and opportunities which maximize the independence of our members.

PARENT TO PARENT OF COLORADO

CP of Colorado’s mission is to create, support and encourage inclusive opportunities for all Coloradans and their families through early education, employment, information and referral, advocacy, public education and collaborative strategies.

SPECIAL KIDS – SPECIAL FAMILIES INC

Special Kids – Special Families promotes, strengthens and supports individuals with disabilities and their families.

SPECIAL NEEDS CHECKLIST

This article shares a variety of options for special needs considerations in navigating your city.

SPECIAL KIDS – SPECIAL FAMILIES INC

Special Kids – Special Families promotes, strengthens and supports individuals with disabilities and their families.

TENANTS RIGHTS AND HOUSING ASSISTANCE

This is an extensive list of a variety of resources and housing assistance options for people with disabilities.

THE CHANDA PLAN FOUNDATION

The Chanda Plan Foundation’s mission is to help people with disabilities enjoy improved quality of life, health and function through the provision of, and advocacy for, complementary alternative treatments.

THE HUEGA CENTER

The Heuga Center is dedicated to improving the lives of people with multiple sclerosis through educational and wellness programs, and ongoing research.

VOCATIONAL TRAINING FOR ADULTS WITH SPECIAL NEEDS

This article lists some of the best vocational training programs for people with disabilities in 2019.

In progress. Check back in the future for even more resources for caregivers, including support groups for caregivers of spouses, caregiver burnout resources, and other ways to find
caregivers support.

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